Their Story Matters with Sara Troy and her guest Serafina Sammarco aired from August 2nd
Serafina, a humanitarian and advocate of those living with Thalassemia for over 30 years.
Her mission is to educate and support individuals affected by this genetic disorder. She truly believes that no matter what our life challenges may be, rising above them is what makes us stronger.
Her drive was sparked by her daughter’s diagnosis of a genetic blood disorder at the age of 8 months and her death at 14 years of age.
She is the founder and president of The Vancouver Thalassemia Society, which she started after her daughter’s passing.
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What is Thalassemia?
Who is affected by it?
Diagnoses & Treatment
When Did I first learn about Thalassemia
How did my family handle it
Led the way to new treatment /
law (Isabella’s involvement)
Her Treatment and experiments
Forming a support Group after her passing
(The Vancouver Thalassemia Society of BC)
www.bcthalassemia.org
After a 20 year career in the corporate world, Serafina resigned to write and publish her daughter’s memoir titled Isabella’s Journey. Writing Isabella’s memoir using her story to inspire others in similar circumstances life is great and it is to be enjoyed in spite of all our challenges. Her inspiring story is charged with a positive outlook and filled with love and dedication for all who are experiencing stumbling block; leading them gently back to their life’s paths.
www.sammarco.ca
www.serafinasammarco.com
serafina@sammarco.ca
ssammarco@shaw.ca
Face Book –serafina sammarco
Telephone # 604-274-1052
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